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Gauchers Association

Other or former names: GA

Description

The Gauchers Association was formed in 1991 to meet the needs of those suffering from Gaucher's Disease, an inherited enzyme disorder. The Association aims to:

Provide information about the disorder and keep families and specialist advisers up-to-date with latest developments.

Encourage the availability of treatment including enzyme replacement therapy.

Keep families in touch for support.

Actively encourage medical research.

A newsletter is published twice-yearly and an Information Pack is sent out to all new members (sufferers and families) and medical advisers.

Contact details

Web address: http://www.gaucher.org.uk

Email: ga@gaucher.org.uk

Telephone: 01453 549 231

Fax: 01453 549 231

Address: 3 Bull Pitch Dursley Gloucestershire GL11 4NG

Other information

This information last updated: 14:12:30 Thu, 18 Sep 2008.  Something wrong? Tell us »

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