Gauchers Association
Also known as: GA
Description
The Gauchers Association was formed in 1991 to meet the needs of those suffering from Gaucher's Disease, an inherited enzyme disorder. The Association aims to:
Provide information about the disorder and keep families and specialist advisers up-to-date with latest developments.
Encourage the availability of treatment including enzyme replacement therapy.
Keep families in touch for support.
Actively encourage medical research.
A newsletter is published twice-yearly and an Information Pack is sent out to all new members (sufferers and families) and medical advisers.
Contact details
Web address: http://www.gaucher.org.uk
Email: ga@gaucher.org.uk
Telephone: 01453 549 231
Fax: 01453 549 231
Address: 3 Bull Pitch Dursley Gloucestershire GL11 4NG
Other information
This information last updated: 14:12:30 Thu, 18 Sep 2008